Living with Parkinson’s

Parkinson’s Symptoms, Diagnosis & Dystonia: Live Q&A with Bryce (Ask Me Anything)

Bryce Perry Season 1 Episode 13

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 🎙️ Recorded Live – Now Available on Replay!
This episode is a replay of a live Q&A with Bryce, where he answered real questions from the global Parkinson’s community. From early warning signs and misdiagnoses to dystonia and daily challenges — nothing was off-limits. Whether you’re newly diagnosed or decades in, this honest, unfiltered conversation is for you. 

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 This is my personal Parkinson’s medication journey—what works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be tailored to individual needs. Before making any changes to your medication or treatment, consult with your doctor or healthcare provider.

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Disclaimer:

The information shared in this podcast is based on personal experiences and opinions. I am not a medical professional, and this content should not be considered medical advice. Always consult with your doctor or a qualified healthcare provider before making any changes to your treatment or lifestyle.


Hey, welcome to my live. Welcome to live Q&A. I'm so glad you're here. If you're here, I'm glad you're here. That's amazing. And I've got kind of some feedback here. So I'm going to turn some of my volume stuff down. So welcome. It is, what is it? It's Tuesday night. It's a Tuesday or Wednesday. It's a Wednesday, Tuesday. It doesn't matter what it is, but I'm glad you're here. Welcome to the broadcast. My name is Bryce and this is Doing Live Today. And it was getting so many questions in the comments and whatnot is because we've kind of grown really quickly here. So I thought I'd just take a night and just come on and just be here live. So I'm actually sitting here right now. We're live. And you can see in the chat, wherever you're watching, I think we're live on Facebook and YouTube. But there's questions. You can drop some questions right in the comments. So if you have any questions for me, I'm just going to sit here and I'm going to answer them. I'm going to answer the best I can. It's one of the things I hope you can appreciate about me is I'm pretty real, honest. And, you know, don't sure code it, if that makes sense. I mean, I've been living with Parkinson's now for 15 years. So anyway, give me a shout. Let me know. I'm by myself. So if I see me looking over here, that's because I'm looking over where the comments are. So feel free in the comments to just let me know that you're here. Say hey, say hi. We'll shout it out. And I've got some pre-questions that have come in and I will go through those questions and answer them. But I'd really love to engage with you. That's something that I love to do. And if you know that, if you look in through the comments or whatever, I'm always kind of, I'm in there. I love it. So this is something that was a dream of mine to build a community of people that, you know, there was a really crazy, not a crazy comment. I shouldn't say a crazy comment, but there was a comment in the comments. There was a comment in the comments today that I thought was quite interesting. And that was, it really kind of struck me. And someone was, we were talking about the video that was, that came out today. And it was like, you know, like, and I'm, I don't want to give it away if you haven't seen it yet. So, but anyway, they said that there's too many people on the internet that are, you know, when you start Googling stuff and, you know, if you've been diagnosed with PD or you know, somebody was diagnosed with PD or loved one with PD, you know, it's tough, right? You know, that that's really hard. And there seems to be like, not a lot of answers out there. So when we, I don't know, when we, we start Googling and we start looking for answers and how do you know what to trust? How do you know what's real? How do you know what's not real? And when I, I don't know about you, but when I started looking through and you know what, give me a, give me a, you can hit that little heart button or something, or give me a heart to know I'm on the right page or on the right track here. But I felt like I'm the worst of the worst. Every story I Googled, I'd say, you know, how, what's the life expectancy of Parkinson's? And you know what? There was one time and I pulled it up and it said, the life expectancy of Parkinson's is 10 years. Okay. Well, I'm 40 years old when I got diagnosed, right? I was 40 years old when I got diagnosed. And so I just read something that said my, you know, life expectancy is 10 years. Can you imagine, like, just for imagine for one minute, what it's like when you're 40 years old and you're trying to figure out what's going on with you and you know, stuff like that. And all of a sudden you're kind of going like, oh, wait a minute now I've got 10 years. That's what I've got 10 years. So that means when I'm 50, now that's freaky, right? That's like scary. So that's ridiculous. So I've, I've blown that by another five years past that. So I'm at like 15 now. So um, 15 years, it'll be 15 years in September since I was diagnosed and um, you know, started my, my, my med journey and whatnot. So, um, yeah, so needless to say, um, you gotta be really careful with the information you get. So anyway, I'm live. So we are live. We're live here now. If you're on, uh, on board and welcome, welcome, welcome, welcome. But do me a favor, just so I know I'm not sitting here all by myself. Um, just, you know, if you don't have any questions for me, that's fine. Just, but maybe just put something in the, in the little chat, the live chat. So I don't know if the comment buttons, the comment section is open or not, but there's a live chat. You can just join it. Um, and just throw in there, just say, Hey, hi, here I'm here. I'm in, I'm in Wama, Wama, blue Canada. And I can like, Hey, cool. And I know, you know, I know that someone's watching and we're, we're good to go. So I'm going to start with a question that I got, uh, sent to me and I'm going to look over it. So again, I'm not ignoring, I'm just looking over to my right here because I need to make sure that, um, I know what I'm doing here. So, uh, let's go to a question that I got in and I will open up the questions here. And the first question is, there we go. So it said, Hey Bryce, how did you first know something was off before you got diagnosed? How did you first know that there was something off before you got diagnosed? I wonder if I can just copy that and put it in the chat and then everybody can see it. Let me just look here, copy, and I will throw it up there just so, uh, you know, you know, we're all on the same page. So this was the question. Um, yeah, I know what to do. I'm going to go here. Uh, bear with me. This is my first time doing this. So, uh, I am, uh, far from a professional. Uh, there we go. I'm far from a professional, so I'm going to put this here in the chat. This is a question that came in from a viewer or a listener and I go there and there and I'm gonna hit the button. Now it there we go. All right. Thank you. I'm not alone. Thank you MK. I appreciate that. I was like, Oh my gosh. Anyway, so this is a question that came in. Um, and I'm going to hit this other button here cause I've got the power. I've got the power. All right, cool. Welcome MJ. Thank you for joining me. I really do appreciate that. That is fantastic. All right. So here's the question. How did you know that there was something off before getting diagnosed? Okay. So early signs of PD, right? And again, we've all heard and, and, and, you know, and again, I could be preaching at the choir, but I'm really big on education advocacy, right? And so I was actually today it's Parkinson's awareness month. So today I did a radio interview on, uh, Oh my God, there goes my meds. Sorry about that. Uh, today I did a radio interview on, uh, it was called CBC Manitoba, which is a, um, uh, radio station. And they asked me almost the same, similar question to that. And, and it was, this is that number one is it's not just an old person's disease, right? So all of a sudden I was sitting here one day and, and, and this is what it was kind of, kind of, I don't know if it's kind of freaky or kind of neat or different. I'm not sure you tell me, but my grandmother had Parkinson's. She got diagnosed probably when she was like 67 or 68, I guess. And she had Parkinson's and she passed away, um, the day before my birthday in September, uh, be some 15 years ago in September of this year on my birthday or right around my birthday. Um, I started getting a twitch, a twitch in my right hand. Right. And so, you know, most of us know that Parkinson's is starting probably half one side of your body, right, right or left. Um, and you know, we know that the, it's a resting tremor, right? So resting tremor, when we're at rest where it was, when it's going to tremor, not when we're, you know, essential tremors, when we're doing things and moving. So it just started twitching. And so I, honestly, at the time I thought, I didn't really think, I, let me, to be honest, Parkinson's disease was not the first thing that popped in my mind. I get a twitch and Parkinson's, it wasn't like, Oh my God, I must have Parkinson's. I got a twitch and I'm thinking, Oh wow, I'm, maybe I'm just like really stressed out. Maybe I'm, you know, maybe there's some anxiety running around in my head because my, you know, my grandmother passed, you know, it was a hard time, but my grandmother and I were very close. And so I thought it would just go away. I'm just tired. I'm stressed, you know, whatever it might be. So after, uh, the next day and it was still there and the next day it was still there and it wasn't going away. And again, I noticed, and, and I'm going to let, I'm going to tell you something that I'm actually, I don't know if I'm that proud of, actually, to be honest with you, that, you know, my grandmother had it and I knew nothing about it. Isn't that awful? I, you know, I didn't know, I knew she shook. I knew she tremored. I knew she tremored. I knew, you know, in the later stages of her life, she was having trouble walking. I knew that she drooled. I knew that, but that's all I knew. Right. So I didn't even know, I didn't know what Parkinson's was. I really didn't. Um, and so this, this twitch kept coming around. So I'm, then I'm thinking, then it started to be done. I'm like, Oh my goodness, I wonder if this is what my grandmother had. So what's the first thing you do? I went to Google, I started Googling it and I'm like, it lines up. Maybe this is what it is. Hey, this is, yeah, it could be, could be, could be, but I, I didn't, I thought, you know, it's go away and it's not going to be, it's not going to be there anyway. But three months later, I, I realized that this thing has not left my body. I'm still got this twitch in my right, my right hand, but now I'm starting to feel like stiff, like really stiff, like abnormally stiff. And I thought, okay, again, did I work out too much? Did I carry too many things around? But because the stiffness, it was like a stiffness that when you have a really good workout and then you're, you're, you've got that, everything's stiff. So I thought, well, maybe I should go to the doctor. Maybe I should just go get just checked out. So, you know, of course I went to the doctor and he started, you know, we went through all these tests. I did the, uh, it'll be doing blood tests and MRI, did CAT scans, did, um, all the worst tests that I think is the worst test in the world is, and I don't know if you've had this and if you've had this, let me know you've had this. I think it was the worst. I call it like the electric shock, like, like I call it like the shock, the shock treatment. Um, and it really, I think what it's for, I really, what I think it is, is it's, it's checking for carpal tunnel is what I've told, told after. But anyway, that was the worst one for me. It's like, this shoots these shocks all over your body and see how your, your nerves are going to react to it. It was awful. It was really, really bad. In my opinion, it was really, really bad. Um, but, um, and so anyway, they, he, my doctor said, I don't know. I don't know what it is. Everything's clear. Like everything, you're passing all these tests and everything. So I thought to myself, okay, no problem. He said, I'm going to send you to a neurologist. So the first neurologist I saw, he, he kind of did some tests and he said, well, what do you think it is? And I'm like, well, I do it. If I could diagnose myself, I would, I'm here to, you're the pro man. You're supposed to tell me what it is. So I'm not here to guess. I, as I, all I know is that I got a shaking in my, in my hand. And he said, um, what did he say to me? He said, uh, well, you know, what do you think it is? What do you think it is? What do you think it is? He kept pushing me. And so I said, well, okay. Just saying that, you know, my grandmother had Parkinson's, I don't know if it's genetic or not. And so I know she had a shake in her hand. So I don't know, Parkinson's, like, I don't know. And he started to laugh. Like he literally, like he literally started laughing at me. I said, well, that's so funny. And he's like, well, he said, um, do you know Michael J. Fox's? I'm like, of course I, you know, hello, Canadian, you know, hello, you know, movie star. And of course, anyway, back to, anyway, I said, of course I know Michael J. Fox's. He goes, okay, here's what's going on. So you're feeling really upset because your grandmother died and you're feeling kind of disjointed from her and, you know, and, you know, you've seen Michael J. Fox and, you know, he's young. So he said, you know, I just think what's happening is in your head, you're trying to connect to your grandmother and feel close to her. So you want to kind of maybe have what she has. So in your head, you, you're telling yourself you have Parkinson's, but he said, the truth is that Michael J. Fox's is Michael J. Fox is an anomaly. Okay. And it does not affect, you know, there's chances are like it was off, like it's not going to happen. It does not affect people your age. Okay. And again, this time I'm like 39 at this time. And I was like, okay, so it's in my head and he goes, yeah. And I said, okay, so what you're telling me is not only do I have this twitch in my hand that now you don't know what it is. Well, freaking nuts. Like I'm crazy. And he's like, no, no, no, you're not crazy. And I'm like, well, that's what you're telling me, man. It's in my head. I'm making these things come upon me, which kind of really kicked me off, you know, be honest. So needless to say, I, uh, I left. And I was like, that's it. I don't want any part of this. I don't want, you know, that's, that's enough of that one. And about six months later, I was like, uh, I was like sleeping and woke up in the morning. And when I woke up in the morning, I had my toes on my right side. Okay. So I'm twitched in my right hand, my toes on my right, my right, my toes on my right, my right foot. How about that? My right foot and the toes on my right. They were, they were curled. They were crunched up like that. Like just curled right over. And I'm like, Whoa, what is that? What's happening? And I couldn't get them apart. Like they were stuck and I couldn't get them apart. I'm like, this is nuts. What is happening to me? And so I'm like, Oh man, I better go back to my doctor, my GP and just tell him like, something's really weird here. Anyway. And again, at any time, please, any questions you have anything, there's nothing off, there's nothing offline. Like there's nothing like off balance. Welcome here tonight. It's live. I'm live. I'm with you. If you're here right now, throw it in the comments. And if you don't have a comment, just tell me you're here. Say hi. Uh, I really appreciate that. Anyway. So I went back to the doctor and he said, okay, you know what we're going to do? We're going to send you to a different neurologist. I'm not going to send you back to the guy, the guy that you don't like is what he said to me. And I'm like, I'm not saying I don't like him. I just felt strange about it. So he sent me another, um, you know, wait three months later, I get this thing and I'm going to another neurologist and I'm just going to kind of cut to the chase here. He had, uh, at the end of this hour and a half of weird testing, he just said, I don't know what it is. And I have no idea. He said, I don't really know. And I can't diagnose, you know, I just don't know what it is. And so, um, trust me, I'm not saying Parkinson's this time. Like he's like, what do you think it is? I don't know. Frickin idea. I have no idea what it is. Like, I don't know. You tell me I'm not even going to guess here. And so, and so, uh, um, I left that office with, so one neurologist said, I'm crazy because I'm too young to Twitch and shake and have Parkinson's and the other neurologist can't figure it out. And all I know is I still got a Twitch and every morning I wake up with my one foot on my one foot curled. Um, okay. I said, I guess I'm gonna have to figure this out. I'm just going to live this way, I guess. What else? Like what else are you supposed to do? I don't even know what the, I don't know what to say to that. Um, this is a really long answer to, to, Hey Bryce, how did you know first something was off? Um, and then long story short, um, my doctor, and this is a crazy story. Actually, I'm going to tell you a really, you got to hear this story. Cause this doesn't even, this story doesn't even make sense to me. So I had this, this Mike, my GP, my, my, my, my, my family doctor, my GP, he, I went back and I, so now I'm avoiding him. I don't even want to talk about this anymore. I'm just going to live with the fact that I'm going to have this like twitching going on and this curl toes. I'm just going to live this way, still live this way. And, um, so I went back just for, I applied blood pressure as well. So I had to go back and get my blood pressure checked, you know, like general stuff. And in that conversation, he says to me, he says, how's your foot and your hand? I said, well, you look at my hand. What do you think? Like, is it twitching away? And he goes, yeah, it's twitch. It's twitching away. He says, I think we should send you, I think we should send you somewhere. Like, I think we should send you off. And I'm like, I'm like, no, like, no, thank you. Like, no, I don't want to, like, I just don't want to, like, I don't want to be, I don't want to succumb to that. And he said, no, I really think you should. And I'm like, no, I'm not going, I'm going to live this way. And he was like, okay, well, you know, up to you, like up to you. So, so anyway, I, I end up, um, I leave. And three months later, this, uh, I get a, I get a letter from a movement disorder clinic and says, Hey, your Dr. Lee has been, has referred you to this, to, to us. And here's your appointment. And I'm like, that's son of a gun. You know, like he, he did it anyway. He didn't listen to me. I was kind of ticked at him. And, and, um, but I thought, you know, okay. And I Googled something and I saw something about movement disorder clinics being, um, you know, uh, being the place to, you know, where to go, right. Go to. So anyway, I'm like, screw it. I'll just go to this movement disorder clinic. Like, you know, two neurologists that I was not, sir, whatever you want to call it. The other one, um, said, uh, he didn't know what it was, but I'll just, I'll just go. I was going to trust my doctor and go and, Hey, do we don't do weetles, weetles, how are you doing? Um, and, and, um, one of them said, so anyway, so I go, I just go, I didn't tell anybody and I just go to this appointment and I get there. And when I walked in the door, the nurse says, I, you know, and I checked in, I'm like, Hey, which one am I? And she goes, and I got a 10 o'clock appointment. And the nurse says to me, I am so sorry. I am so, so sorry. Um, you know, I know it's a hard day, but I, but I, Paul, you know, I just, I'm just, I'm sorry. And I'm like, what the, what just happened here? Why is she saying like, she's acting like really like down, like sad and I don't know, it felt weird. And I said, what's going on? And she said, well, Dr. Lee, your doctor, your family doctor, uh, was playing golf yesterday and had a heart attack and he died. And I went, Oh, what, what? She goes, we didn't know. And I'm like, no, I had no idea. She goes, Oh my gosh, I'm so sorry. I, you know, I didn't, I wouldn't have, you know, anyway. So I'm like, well, that's bizarre. And then I'm waiting in the waiting room and that's when, um, you know, and, and again, if, when you go through diagnosis and you know, those, you know, everybody, everybody who's been there saying, yeah, yeah, yeah. Or give me a, you know what, there's like a little thing, do this. I want to just test this. If you're sitting here, please just bear with me. There's like a little thing on the side, there's like a little hearts and these little smile faces and stuff. And if this, trust me, if this happened to you, I hit that smiley face, like here, I'll hit it. I'll hit one there. Can you see that thing go up there? Like, like that, just smack it a couple of times. If this happened to you. And this is what is so funny. This was the first time ever I'm sitting in the waiting room. And the very first time, you know, when you go to a doctor and the doctor's like, they'll use it in the waiting room. And then when it's still the nurse or somebody will come up to you and they'll say, Hey, uh, uh, Bryce, okay. Hey, room two. And they take you down and they put you in room two and you sit and wait for the doctor, right? Like that's, that's normal. Right? So I'm waiting for that to happen. But the next thing I see this, this fellow come out in this white coat and I'm like, Oh, that must be the doctor. And he's like, Bryce. And I'm thinking, man, this was the coolest. This is the nicest place I've ever been. The doctor comes out and walks me to my appointment. That's so cool. Did anybody have that experience? If you went to a movement disorder clinic or like a neurologist where someone like, they literally, um, came out and met you. Right. And now, of course, now I know, yeah. And they were getting some hearts there now or getting some hearts like that, that happened to you. And yeah, exactly. So, I mean, and I tell him now, I'm like, nice trick. I know it, you know, you watching me, you came to watch me walk, you watch my balance. You watch to see if one of my arms was swinging or not swinging. Um, which by, you know, funny things being said is that I didn't even realize. So why did I feel like, what did I see? I did not realize that one of my arms was not swinging when I was walking. I didn't even know. And, and it was like, sure enough it was. And so five minutes after I walked into that, five minutes. Yeah. Okay. We walked into that appointment. He looked up at me and he said, he said, you know, you have Parkinson's, right? And I went, yes, yes, yes, I do. Don't I? I do. Oh my God. Yes. And, and I had this like unbelievable excitement, like not excitement was like, finally, I felt like maybe he believed me, maybe, you know, and then whatever. And I'm like, and what an, what a wild way to respond. And, and I wasn't even like sensing that there was, I was thinking anything else, but you know, sure enough, as I, when I got back to my car and I'm not going to go into this and you can watch the videos about it, but I would, that's when it hit me. Oh my holy, holy blank, holy blank. I've got Parkinson's what the heck. And that's when it hit me. So, so back to my, the original question, how did you first know? I knew something was off because shaking to one side, toes curled over one side, stiff as hell, like so stiff, like I felt like 150 years old and I didn't know like, and that was it. And now knowing too is that, yeah, my arm wasn't swinging and therefore I also had some balance issues. So that was the, really the main things that really pushed me towards to, to, to, to go get a diagnosis. And I think the worst part of the whole thing, and I don't know I don't know if this is you, you know, I don't know if you deal with this as well, but for me, my stiffness is, is the, is the biggest thing, like the stiff, I'm just, just stiff. Like I'm the tin man, right? I need the oil to get moving and, and, and that, that stinks, right? But anyway, so that was that question. So, you know, again, that's how I knew. There's so many early signs. I wish that I would have, you know, I wish I would have picked up a bit earlier, but you know what, Hey, it's okay. We are what we are. And so that's an answer to that. So again, any questions, throw them in to the comments, please chuck them in there. If you have any questions for me, it doesn't matter what it is, nothing's off limits, right? If I know it, I'll answer it. If I don't know it, I'll tell you, I don't know. And I'll go get, I'll maybe I'll go look for the answers, but let me know, you know, if anything you want to know, I think I don't care if it's personal, it doesn't have to be Parkinson's. I don't, maybe it's something else I can ask, or I can answer for you. Let's see here. M, M, M K. Okay. Yeah. I guess what you're saying is you had a PET or the PET and the, the PET and the MRI. And what we've got here, combining the post-remission, PET, PET, MRI allows for the stimulation of dopamine receptors, binding to brain cells. Very nice. Holy smokes, man. It was some big words in that one. There were some big words in that one. And, and I'd say, here's the other thing too. And, you know, you become used to MRIs and I don't know how it works. And again, I'm in Canada. But, you know, I had to go for a yearly MRI. Okay. Just, I don't know, yearly MRI. So I, you know, you get very used to, um, you get used to it. You get used to MRIs, don't you? You know? And, and that's the least of my worries. An MRI now is like nothing. Right. Uh, Oh, I didn't realize. Okay. I didn't realize I was leaning forward. Okay. So there's the thing too, right? Didn't realize I was leaning forward or shuffling, uh, not walking normal. So exactly. So that's, I guess that's, it's not interesting. So like I just said, I realized that my hand was shaking because I was visible. I could see it right there, right? I could see it. I realized my toes were curled up because I could feel it and see it right in my, in my hands. Um, but again, I didn't know I was shuffling my feet. And I'll tell you another funny thing. And my, my parents, I was talking to my parents about it. I was the guy, I was the kid, even as a kid, they said, they said, they said, be careful when Bryce is walking around the house because he'll trip over, um, he'll trip over a lead, like he'll trip over a baseboard. And I'm like, what are you talking about? They said, well, you're always bumping into baseboards and bumping into things. Hey, Art. Hey, Art. Nice to see you. Thanks for joining us. Greetings to you as well. Um, but he, and so now I'm looking back and I'm looking back and I don't think I really lifted my feet up at all. Like, I think I've been, it's been a long time since I actually really walked normal, but the things that we don't know, like you said, the leaning forward, yeah, I didn't notice it. Right. Maybe I thought maybe I only leant forward when I had too much to drink a night when I was a teenager. I, you know, I don't know, but I think that that is something that, um, that those are the signs that people need to know, right? They need to know things to look for and things to watch out for. And again, we're all different, but there's a lot of similarities with all of us. So, um, that's a really interesting point, right? And what do we got now? So we've got a question here from details. Anyone with, what do we got now? Anyone with dry skin dryness? My dermatologist told me it comes, it's common with PD. Anyone with skin don't. So I don't know if anybody out there, you can comment as well. If you've got skin dryness, I don't, uh, personally, like, it's just not, not something that I, that I deal with. Um, but I, I don't doubt that it can come with that PD. I know I have eye dryness. I've been trying to wear contacts and it's just crazy. I sometimes wonder why they, why they make your mouth drool. Why, why does it make your mouth drool and your eyes dry? Like, you know, can't we take the drool, put it back in the eyes? Like maybe that's why your eyes are dry. Your eyes are actually leaking. You know, maybe the, it's going, uh, am I getting crazy? Uh, you know, I just think the wildest things, I think sometimes I watch, it's like watching a cartoon with me. Um, but anyway, so, uh, that, that's something that, yeah, again, I don't deal with, but you do. Oh, and, and art is listening from Kingston, Jamaica. Awesome. Well, hopefully it's nice. I'll bet you it's, I'll bet you it's not snowing in Jamaica. I'll bet you it's not snowing in Jamaica, but I'll tell you where I am today. It's snowing and it's April. I almost thought it was an April fool's joke, but it's snowing. And, uh, I'm not that excited about that. I'm not that excited about that. All right, Niels, what do you have to say here? Uh, it's, uh, my eyelids and my forehead. Okay. So yeah, I will contend to that. You know what? I'm going to talk myself out of what I just said, because I have right here between my eyes, like right in here, here and here, right here and here, right here. It's so dry. And again, dry around here as well. And it gets super, my skin, I can almost like scratch it off. So there you go. Never even thought about it. Never even never thought about it. So maybe that is it. And that's where I get it right in here. Huh? Very cool. Um, and West Virginia is WV West Virginia. Okay. All right. Well there, now we're the same. So we both, we both have that. So right between there and that's where I get it. So I'm assuming that that's something we have in common. That's pretty amazing. Oh, wait a minute. Wait a minute. Who do we got now? Got another one. Yep. Skin dryness and runny nose, LOL. Hey, from Australia. Oh my God. Look at this. Uh-huh. Look at this. West Virginia. Guess what? We got Australia. We got, we got Jamaica. We got Canada. That's amazing. I love that. I mean, welcome Joanne. That's fantastic. And the runny nose thing. I'm mad. I don't know if you can tell, maybe you can, maybe you don't know the difference. My nose. I'm ready to chop the thing off some days now. Driving me bananas. It's stuffed and then it runs and then it's stuffed and then it runs. Like give me a break. All right. Oh my God. No. Look at this. Glen and where are we? Glen and Jeannie. Glen and Jeannie from Lincolnshire, England. Wow. We're circling like a welcome, welcome, welcome. Wow. I'm just, I'm, I don't know what to say. I'm blown away right now. You know, when I, when I started doing this, Florida, my God, Florida, I used to live in Florida. I lived in Jacksonville, Florida for 10 years. Welcome, welcome, welcome. So, you know, we've got United States, we've got Canada and we've got Jamaica. We've got England. We've got Australia. I never once thought, I never ever once thought that, um, I'm humbled. Thank you for being here. I appreciate it. I really, really do. It's amazing. I, uh, thank you for being here. Again, anything that you want to ask me, you've asked away. I've just kind of left this myself open. I do have questions that were sent in, you know, but I I'm, that's why I just wanted to be here. If there's something we could talk about Yakima, um, and do it. And what's this now? Runny nose to runny nose, runny nose. Thought it was my allergy. Oh my God. Allergies. Another Florida. Look at the Floridians. Are you guys here? Cause I used to live in Florida. Welcome Paul. Uh, welcome Paul. Um, Hey, you know, it's interesting. You think about what I just said, we got, you know, Australians, aren't we all in some type of weird trade war right now? Awesome. Amazing. Uh, we've gone international. We have gone international. That's amazing. I love it. It's so awesome. And I just think, isn't it interesting that we're sitting here today all around the world and all kind of dealing with the same thing and thinking the same thoughts and seeing what we have in common and don't have in common. And it's quite, to me, it's quite interesting. It's quite, quite exciting. I'll tell you about a little bit about my day today. Yellow heart red there. I love it. I love it. Love it. Love it. So I did a radio interview and a television interview, and I'll be honest with you, the television interview, I was so upset. I was so mad because they told me, they kind of tell me a couple of the, you know, a couple of questions they're going to have and I'm all prepared. I'm ready to go. And they're like, what's the one thing that you don't want to talk about? They always ask you, what do you don't want to talk about? And so one thing I said, like, I'm not qualified to talk about where it comes from, right? Why? How do you get it? Like, what do you get it? Because, and again, just so you know, just so we're on, so you know, I work, I am the Associate Director of, I am the Associate Director of Community Engagement and Outreach for Parkinson Canada, which is the national organization here. So I have some authority, right? I have some authority. I've got some stuff. And the one thing that we always say is that when it comes to like, where does it come from? You know, the line that we're supposed to use is that, you know, we're not a hundred percent sure. That's why we need more research and more dollars to research go, but you know, most of it leads to genetics and environmental. Okay. And so, so that's, but anyway, but we, so because I don't, it's Parkinson's Awareness Day. We're trying to bring awareness and stigma and, you know, we're, you know, to get into it. And so we, so, so they always say, so, well, let's not get into that. Let's talk about, I said, let's talk about this, that let's bring awareness to the fact that, you know, if you get diagnosed with Parkinson's, it's not a death sentence. So, you know, a diagnosis is not a death sentence. You can still live a healthy, productive life, right? There's some changes you have to make, and we got to bring that, and we got to make sure that we get more out there and more programs and more services and accurate information so people can live a good life and, and, and, and live a life to it to the best of that we can, because I still believe that. And I know that, and I believe that I'm a testament to it. And what does she lead with? Like, she's like, hey, you were diagnosed at 40 years old and, and you know, and, and it's how, what was that like? And I'm like, oh, it was great. Like it was awful. It was terrible. You know, and I tell a little bit of the story and she says, make sure you tell your story in like a minute and a half. And for me that a minute and a half, give me a mic. Anyway. So, so the very first question she says is, okay, so Bryce, you know, let's get into this. Okay. So what, you know, what's, what causes Parkinson's? And I kind of, I'm like, really? Like we're going here? And then she goes on to ask me all these other questions that weren't on the list. So I was like, kind of ad-libbing a little bit and it was awful. Like I was, but it was good. It was good because you know what? And we got out there, we got, we got advocacy, we got the word out. We're like, Hey, this is, you know, we need, you know, we need advocacy there. And then I did a radio interview after that. So this was again, now it's just like two days in a row where I'm doing like a whole bunch of all these things. And the radio interview was amazing. It was amazing. Cause she, I could tell she was interested and she wanted to know more. And I was, you know, so again, love doing that stuff. And then that's kind of what I thought my lot would be. I don't even know how I got down this path, but that's where we got. Anyway. What is this now? Hi, Bryce. Let's see what this says here. Oops. Sorry. If I hit, if somehow your, your thing runs away, your thing runs away. If your comment disappears, trust me, it was not on purpose. Okay. Hi Bryce. Thank you for the show. Incredibly important. I'm a physiotherapist. No, is that a psychotherapist? I'm sorry. Psychotherapist. And I work with both individuals, Parkinson's and family members caring for loved ones of the disease. Amazing. Amazing. And I don't know what to call you. So I call you a like a lingo, but thank you. Thank you. Thank you for what you do. I mean, I love that. That's just, you know, thank you for what you're doing. Oh, and hold on. In your experience, what do you think are the most important psychological or emotional aspects to explore in therapy for those affected by Parkinson's? That is a great question. And I would say this and one of the other, and I'll tell you, this is not just for me, not just from my personal experience, but also from my, my work experience. So one of the teams that I run for Parkinson's Canada is called the information and support team. And we have a live toll free number for Canadians to call that they can call and get support, information, resources, referrals, things like that. So I'm privy to the fact that what people are calling about and for, and, oh, and especially since COVID, which is, this is, this is quite interesting. I think, I think one of the greatest things and one of the biggest things, and there's, there's some of it's misunderstood and some of it's like, we need to know, but the apathy. Okay. The depression slash apathy side of this, of this disease. Okay. It's huge. It's, it's huge because we have many caregivers and if you're a caregiver, God bless you, love you. Thank you for what you do. I mean, it's, it's tireless. And I know being a caregiver is frustrating. I know it's, it's, it's, it's, it's a, it's great patience. And I respect that so much, but there are so many caregivers that call that just say, look, I've had it. I've had it. Like this diagnosis is an excuse to be lazy. That's what they say. There's an excuse to be lazy. And so our team would like, we'll tell what's going on, what's happening. And they're like, they just, they, they lie on the couch all day. They, they, one day they're great. One day, you know, one day he takes out the garbage. One day he hits the grass, takes out the garbage, goes to work, does all this stuff. And his kind of his normal self or her normal self. And the next day, the next day they're, they're on the couch. And, and, and why are they so lazy? And it's like, my gosh, you know, that one of these things that are hard to explain and they're almost sound impossible is some days are good. Some days are bad. Well, when is the bad day hit? Don't know. When I wake up, it hits. And look at that. I just saw it. So just one sec. And I'm like, oh, illegal, illegal. This one, that's a caregiver right there. Hi, honey. Thank you for joining my life. Thank you. That's amazing. That's my wife. Just celebrating our first anniversary. So amazing. Love that. Love that woman. But anyway, so that's a really misunderstanding. It's the apathy behind it. And, and, you know, and if you ask, you know, if we do a straw poll right now, how about we do this? Anybody who has Parkinson's again on the right hand side, there's like a little, let's do this just for fun. There's like these little emojis. You'll see like the hearts on the side. They're like big. There's one that looks like, like fireworks or like a party, like a party thing. If you can see that roll across your screen, if you're on the right on the live, how about we do this? If you have off days where you feel tired, exhausted, frustrated, and have no idea why, and cannot predict it's coming, hit that little button right there. Let's see if any of those things fly up and down just as an example to show you that it just happens and there they go. Right? So that's something that is such a, and it's hard. And when somebody says to you, you know, why aren't you doing this or why aren't you doing that? That's a tough thing. That's really, really tough. Second to that, the other side to it is isolation, right? Parkinson's is such an isolating disease. If you create that, hit the, hit the heart button on that. The isolation is so hard and so many people, they, they, we, we tend to isolate because number one, am I going to embarrass somebody if I go outside when I'm looking like this? Or am I going to get, you know, if you go through the, just even just read the comments from the videos and just watch and see what people say. And you'll see them say like, well, I didn't want to go on a trip because what if I'm too tired? I'm going to, I'm going to let my family down because I'm not going to, you know, I'm not, we're going to pay all this money, go over here and I'm going to have this day where I can't do anything. And we're going to, it's a waste of money and a waste of time. And it's, oh my gosh. And, and so we're so worried about what's going to happen or what could happen or what's going to, what's going to be that it's, it's, it's, it's debilitating, or we're embarrassed of our symptoms. You know, I can't go sit in a restaurant because I don't want people to stare at us, or I don't want my people that I'm with to feel awkward because I'm shaking while I'm eating or, and things like that. So then we tend to isolate. We tend to, to, to get in, go in ourselves and stay in ourselves. And we can't do that. We can't do that. That's, that's, that's dangerous. And that's why, excuse me. That's why, hello, Living With Parkinson's. How are you? Where are you from? That's why, excuse me. That's why I'm such a big promoter of going to support groups or going into a group or being active, seeing people, doing something, even this, getting involved, watching, looking, hearing another side of the story, hearing the story that it, it, it's going to be okay. You're going to live, you're going to, you can still live productive, hearing the good stories, not just the bad stories and, and, and isolating ourselves in. So those are, to me, the main things that we, we come across and we do. And, and, you know, honestly, I was five years in, five years in, I didn't want to, I didn't want to deal with it. I didn't want to see people. I wanted to stay away. That was just what I wanted to do. So I'm hoping that answers your question. I think I'm so excited that you're here and, and I'm hoping that we're going to get, you know, that, but again, anybody throw it in there, you know, anything you want to know, we've talked about dry skin. Now we've talked about, that was a great question. And thank you for that. It talked about, you know, what are the biggest challenges and emotional challenges? I think one of the other things that, you know, if, if, if no one else is going to ask me a question, I'm going to keep answering them. So I can talk all night. But one of the other things too, that, that I know it's very, it's frustrating for me. And so like an oxymoron thing where people say, you know, you look, you don't look like you have Parkinson's, or maybe you don't have it as bad as they have it, or, oh, you know, well, maybe it's better you got that than something else. And it's like, come on, man, that's awful. Like that is awful agitation. Yeah. And the agitation, the frustration, like it's, it's, it can eat at you, right? It can eat at you. It really, really can. And that's tough. That's tough. So here's a great question in the, in the, in the comments, and I'm going to, I'm going to take a straw poll before I answer the question. Does anybody know what dystonia is? And if you do, or if anybody doesn't know, or does know, and the reason I'm asking that is because I feel like I get asked a lot about dystonia. And I feel like there's some people, like it's something different for everyone, if that makes sense. So I'm going to put it up there. And this is from Paul. Paul, thank you very much. Do you have dystonia? So this is my relevance of dystonia. There we go. Okay, I muted myself. How do you like that? So this is where I, this is my, this is my thing with dystonia, right? So do you have dystonia? And that's that involuntary movements, right? And it's more of that swaying, that kind of, kind of, you know, it's kind of moving your, in different, in different ways. And if that's, if you feel it's different than that, and you've heard it's different than that, you let me know what, you know, what you think it is. But that's what I think it is. And that's, the answer to that question is, and this psychotherapist is really going to love this answer. So, so lean into this one. Because I had this, yes, I can. I'm going to answer your question first of all. Yes, I can. I can. And yes, I think I can control it. Now, when I, when I have it a lot is when I take too much levodopa. And that does that, does that happen often with Bryce? No, no, no, no, it doesn't. So I don't say that willy-nilly and think, hey, I'll just take too much levodopa and I do it. But, but I know that I've overdosed. And whenever I do that is when I thought I took my meds and, or I thought, oh, maybe I missed my meds because I don't feel it. And I take more and then I realized I had a little bit too much. I start, I really start to sway. They start moving a lot, right? And I don't want to be careful so you won't hear me, but it's a lot of, I cut this thing and I, and I do this thing. And my hand does this wild, this is what my hand does, okay? So if I let it go, this is what my hand wants to do. I don't know if you can see that. Can you see that? Okay. Like my hand just, my wife says that I'm, looks like I'm like rolling coins. So this is what my hand does. Okay. And I'm, I'm well medicated right now, but I just let it go. This is what happens. And then I'm going to, okay. And then I could, but I can stop it. So I go, you can see the tremor, but my fingers still do their thing. So this is fully medicated, but it's not doing that rolling anymore. And so I can control that. Take it or leave it. That's just saying to me, but I can control it to a point, but that's what my body wants to do. And my, my legs want to do that too. But my right side of my legs, my legs just go wild. They want to just have a party and maybe it's just a Bryce thing, but Bryce, I don't know. Bryce doesn't want to have a party right now. So Bryce just stays as still as he possibly can, or he tries to protect or hide it. Right. I have all these, these hides and I'm sure you do as well. The hides where you can like, literally like, you know, to have the one hand under, under your, let's say you're in your thigh when you're sitting down to hold it in place and making sure that it's still sitting there, nice and still. And, you know, or holding the hand, you know, holding your hand because I'm always like this. So I'll be standing there just kind of holding my hand and holding the hand or if I'm laying down, I'll just grab, I'll hold onto my foot, my toes and oh yeah, legs, yeah, legs at night, legs at night, legs. Yeah. And at nighttime's off, like during the night, like everything's off limits at night. Cause I don't know, kind of crazy dreams. I can roll around, I can flip around, I can do my whole body just has its, has a little party in the bed and Art's saying the toes and Paul, Paul is a, Paul is, oh Paul, last question. Deedles, I know that's not your name, Deedles, but anyway, legs at night, absolutely. Toes, got it, everything. And so definitely, but for whatever reason, I feel like I can control it. And I don't know if I'm scared of getting to the, I'm not, I think I wonder, and it's so funny that you brought this up because my, my wife and I actually talked about this last night because I said, you know, she asked and, and, and she'll give me a big heart on that one too, I know. She asked me, you know, do you think that you're afraid to let it go? Because once you do, you'll never be able to control it again. And I'm like, I really don't want to control it. I'm not embarrassed of it. I know I've had this thing for 15 years, so I'm, I'm beyond embarrassed, right? I'm beyond the vain things gone. I'm, I'm not the, the young stud looking stud I was anymore, you know, as I was when I was a young guy. So I'm beyond worried about what I look like. Okay. It's not about that. Um, but you know, so there is some element of control in there, but I know the day it's get this coming where it's gone. And I know that when, if I'm truly relaxed and this is what I, this is what I think. I think that holding back your symptoms, okay, holding back your symptoms and do me a favor. If you think you can hold back your symptoms, you know, I don't know, put something in the, that I know just like put a thumbs up. If you think you can hold back the symptoms, just give me a thumbs up. So I'm going to see if it's just me. Okay. But I kind of think you can, because a lot of caregivers tell me or ask me all the time, why, when we go to the doctor, when I go for my six month or my three months movement disorder neurology appointment, why does he or she act so good? And I'm like, what do you mean actually? They act, they're just good. They just walk in there like nobody's business. Where the day before they were shuffling through. It's like, why do, why are they put on their best performance at the doctors? And so for me, that tells me that it's not just me that can kind of like hide my symptoms if I need to hide them for a little bit. And again, some of us might not be able to, and some could, and there's mostly, yeah, mostly, you know, like that. And that's what I mean, like, you know, mostly, maybe, maybe early on. And if you got it early on, you could do it better then than you can now. I don't know, but we can. And so, but here's my theory and it's so cool. We're talking about this because I thought of this last night. My theory is this, I think that trying to resist and hold and avoid is actually way more work for us than letting it go. And I think that plays into me being exhausted at the end of the day. If you think about it, you're spending the entire day where, either consciously or unconsciously, and I think mine's unconscious. I don't purposely do it like, hey, Kate, today I'm going to fight off this tremor. But I think I've just got used to just kind of just being, yeah, Irving, Art says sometimes, yeah. I think sometimes, that's what I mean, right? I don't mean all the time. I don't mean every time, but sometimes I think we can. I think we can play it a little bit. I think we can stop them for a little bit. We can kind of really buck up if we have to. And anyway, that point being is I believe, though, that that must be so hard on our bodies, right? It must be so like we're actually fighting this thing all day long or whatever it might be. Fighting all day long, fighting all day long, fighting all day long. You can tell. Hear my voice right now. My voice is getting a little bit raspy. Some would call it sexy, but no, it's getting a little bit raspy. Really, it's getting tired because I've been doing interviews all day and I've been talking all day. And so you can tell. So it's getting tired. So I'm thinking my body must be the same way, right? Yeah, I know what you're saying. What's that say? Yeah. Hey, Dolores, how are you? Yeah, I know what you're saying. Yeah, I feel exhausted. Yeah, exactly right. Absolutely. Absolutely. So and did I watch the Michael J. Vox documentary still? I did. I absolutely did. I did. And so that's what it is. Okay. Yeah. No, we're saying feel exhausted. Okay, cool. And what about the cognitive issues? Forget, stall. Oh, really? Yeah. Tell me about it. Those are those like those little motivational morning things I do. Those are like real things. I don't just make those up. And it's kind of what pissed me off that day or that week. And so I have a lot in there about forgetting what I was going to say next, right? Or just stalling out. And I'll be honest, okay, it's just me being vulnerable. That freaks me out. Like doing this at first. It's like I love doing this because I love I love being around people like I do like I want to I want to I could do this all day. I can sit around do this all day. But half of me is kind of going up and what happens if like what happens if if all of a sudden you just like, like, well, guess what? If that happens, it happens. And you know what, I'm kind of thinking that most people that are going to be in here would be okay with that and don't understand it. And you know, have grace with that. So I got to that point. But anyway, but it's frustrating. Oh, my Lord, it's frustrating. And I've done it in the in in some of my podcasts and videos where I'm literally and I think the one that most people comment on where I was like, you know, I had I had someone in my life that was saying that wanted me to like I've been diagnosed with Parkinson's and someone in my life wanted me to have a second and a third and a fourth. And I sat there. And I sat there. I could see the word. I've used the word a million times. I knew the word. I could see it in my head. I knew I knew it. But I could not tell my mouth to say it. It would not come out. And it was opinion, right? Like a second and a third and a fourth opinion. And it's opinion, opinion, opinion, opinion. I've said it since that day. I've said it. I must say it 20 times a day. Opinion. I've got an opinion, opinion, opinion, opinion. I know the word opinion. But what the heck? And it just floors me. You know, one of the things that I used to do that I thought I was really, really good at is my memory. I remember things that I'd always put people, you know, and if if we need me and as you know, as we become in relationship, I'd be like, like doodles or whatever. Hey, do eat. Hey, doodles. And, you know, I'd know the real name. I'll still call them doodles. I associate things with things I'd call people. I'd have nicknames for everybody. And there was a joke around the office. Actually, there's a joke at Parkinson Canada around the office because there's like we have 17 Michelle's. And so I mean, me remembering who's who and that's Michelle and they say Michelle and they all say what. So I just start making names up. There's a there's a really nice, beautiful woman. She's such a beautiful spirit. And she's got a purple streak in her hair. So but I so I call her pH, purple hair. And I'm like, hey, so I'm saying, hey, we need Michelle. So I'll be like, I need John, Michelle. Corinne and pH. And I need you to go over there. And they're like, and she's like, well, that's me. That's me, you know. And so I could relate to do that. And that thing freaks me out because it's just disappearing. I'm losing that ability. It's like my superpower. It's going away. And and those things really, really get on me. And so, yeah, the cognitive issues are stonky, stonky, stonky, stonky. Well, my husband finishes my thoughts. Yeah. Hey, your husband finishes your thoughts. Like good for like he's good. Sometimes you're really glad he's there. So other times you're like, you know, I got this right. Don't finish that thought. It's a bad thought. But I yeah, that's a very frustrating thing. So it depends. Like some things will frustrate you more than they'll frustrate me. Some things I don't even care about that will probably frustrate the the whatever out of you. Right. And it's just what what I think like what matters most to you. So I speak for a living. That's what I do. And so if you're going to attack my voice, you're going to attack my memory. That makes me mad. Right. I had the worst handwriting growing up and still I was the worst. So they're like, hey, you got Parkinson's. Your handwriting is going to be bad. I'm like, it can't get worse. I could give a damn. I don't even care. This thing shakes that much because it's not a big deal to me. But you attack what I something that's going to affect me. That's what when I get my when I get frustrations. Right. It just drives me bananas. And what does it say? Have you ever been listening to an old song? You know the words, but they don't come out right. They don't come right. Exactly. Songs they've been singing for decades. That's that frustrating thing. Hey, it's something, you know, you know them. You're like that. I be for me songs. My wife, my wife can pick up like anything you like. Hey, what was the theme song for this television? She just belts it out. She'll belt things out. And I'll be like, hey, I know that one. And I'm like that, that, that, that. And it's like, what the heck is the next line? And it's just not there. And yeah, and that, that stuff that's can get you. So back to our, our psychotherapist back there. That's some of the things that, that, that does. And so those frustrating moments. And so how do you deal with them? I guess that's the bigger question is, you know, it's, I think there's value, excuse me. I think there's value in knowing that we're not alone. There's some comfort there, right? There's some comfort for me. I deal with it with humor. Like I said, I, that's not, it's, I've always just kind of been that way. I don't want to just like kind of make fun of it. And that's how we deal with it. But I think there's so much value that I'm not the only one. I'm not alone, that someone else is going through what I'm going through. And maybe we can laugh about it together. And maybe we can share that together. And maybe, you know, they can help through that. The reality is I'm still here. I'm still talking. I talk slower than I ever did. And some of you might think I talk fast. You should have seen me back in the day, back to all our Florida people online. I used to travel around Florida. I've been, I was all over the place doing things on stage and stuff. And I, man, I talk so fast, like fast, fast. And so it slowed my, the way I speak down, it's slowing the way I read down, right? It slows things down. And so what do I do? I just have to adjust to that. I have to adjust to the fact that I'm, it's going to be a bit slower. And so I now, even when I'm going to, you know, speak and do something, I'm, I have to think ahead and plan for it and prepare for it and, and understand it. And you know what? I'm okay with that. I'm okay with that. Right. What do we got here? So we got, got some more here. I'm gonna get some more comments in here. We're getting close up to an hour. Yes, comfort knowing others really understand you. Right, Dolores? Like, I agree. Like, it's like, I said to someone to, I don't know if I said this on an interview today or not, or I was just said this to someone in person. I can't remember, but you really don't know what it's like, unless you have it. You really don't. We can try to explain it. We can try to cover the basis, but you just don't get, you just don't know. So to know that somebody else is kind of experiencing that loss or that change is, is, it's comforting. It's comforting to know that. And, and then to see people that have gone through it. I mean, I'm reading some of the comments and some of you guys are just amazing. Like, Hey, I'm 80 years old. I got, and I'm doing, I'm like 80 years old and you're doing that. That's fantastic. That makes me excited. Like, I'm like, wow, I got so many more years left. So I appreciate that. I really do. I really, really do. Or you've been watching the same program for years on, and it all of a sudden cannot remember what channel it's on. Exactly. What is it? I'll forget the name of a show that I know. Like my wife and I'll like binge something. Hey, we're going to binge this. And we talk about it and we're all over it. And then I'll be like, Hey, do you want to watch that show? That show, that show? We just watched like, and gone. It's gone, gone, gone. Jeannie says Parkinson's is no, it's no great shakes. I like that one too. It's no great shakes. I love it. I love it. I love it. I love it. I love it. And Paul, I appreciate that. Thank you so much. You know, I'm humbled to do this. This is just, um, uh, let me tell you this. So when I couldn't work at my job anymore, I like my corporate job. So I was a, I was a, um, the general manager of a automotive supply company. And it covered three provinces of Canada, Saskatchewan, Manitoba, Northwest Ontario. Uh, and there was about 60 stores, retail stores. I had 60 retail stores, three, uh, the DC, um, I had franchisees. I had, probably about under my realm of, you know, I had managers and managers and sales forces and everything else. Um, but I actually had, um, like tons of people anyway, when I couldn't do that job anymore. And I just, that was it. I was tired. I couldn't, I knew mentally I couldn't do it anymore. Physically I couldn't do it anymore. Um, and I was like semi-retiring. I went, um, I thought to myself, what do I want to do? I said, well, you know what? I've always been a motivational speaker. I've always put on seminars. I've always done these things. I'm going to start a YouTube channel. Okay. This was 21, 22. I remember I'm really bad with the years by the way. And if you ever, you know, when you're watching the podcast, I might say, Hey, in 2022, I did this and the next podcast, I might be 2021. I didn't do it on purpose. That's just, I don't know. It's weird, but I thought I'm going to start it. So I started doing a podcast, or sorry, a YouTube channel, you know, motivational, how to live your best life, how to do all this stuff. And I had Parkinson's, of course I had Parkinson's, I had it for 10 years at the time when I started that or almost more 11 or 12 years. And, um, and, and I started doing that. And then I, and then my, I went on, I did Instagram and I put it on, um, uh, what's the other one? Uh, tick, uh, tick tock, tick tock, tick tock, you know, where all the kids are. And, um, and they were just doing nothing like just, I was, but I was just having fun, but I thought, Hey, I'm going to, I'm going to, I'm going to be a motivational person, be able to inspire people. And I, so I started doing that. And my wife, my wife and my, my, um, my daughter, uh, took one of my videos that was a, um, about, you know, living your best life. And sometimes you have to chase a different dream and that dream is dead. And my daughter and my, my, my daughter and my son's girlfriend, they, they cut it up and they made it look like, like a breakup thing. Like, you know, you know, when you're dating somebody or, and, and, you know, when it's over, it's over, time is over. And they put it on my tick tock page and it went viral. I have like, uh, tick tock and Instagram on this one eight second reel, um, has over a million views on each one. And then I blew up. So I don't know if I have 60,000 followers on tick tock and 40,000 on Instagram, all over these like dating things. So I just started following the trend of the dating trend and doing that. And, um, anyway, Lisa say about a year later, I started with Parkinson's Canada. I started doing a bunch of stuff. And so I just kind of walked away, you know, just stop, stop doing it. I never, ever talked about Parkinson's. I never got into Parkinson's and it was November of this year. I was sitting with the CEO of Parkinson's Canada, Karen Lee, and we just had hosted a PDIQ and you event. Um, um, uh, and so we were talking and, and she says, Hey, you're an influencer, man. You have a lot of followers and stuff. And I'm like, oh yeah, you know, blah, blah, blah. She goes, how can we never post about like Parkinson's? Like, why don't you ever do that? And I'm like, well, I'm busy where we've got a lot of work to do. And she's like, you should do that. Like you, like you gotta, you should do that. You help people do it. Like, you know, do it on your spare time, do it, just get out there and help people. And I thought, okay, you know, that's a good advice. I'll, I'll take that, Karen. That's great. So around December or January, like a couple of months ago, I just started posting and this is what's happened. It just went wild and crazy and exciting and starting to build a community. And like, as you saw today, we're all across the world on today, you know, from Jamaica to England to Florida and West Virginia and Canada and Australia, like amazing. So very humbled by the fact that, so humbled by that. And thank you for that compliment. It means a lot to me. I don't, I don't run on compliments. I don't mind them, but I really just have a heart to share what I've shared. Well, share what I can share. I can tell you what I've gone through. I can tell you things I've learned along the way. I can tell you that I'm hooked up, you know, with a pretty national organization who, and who, again, you know, I can do PDIQs with, with parties of Canada and Michael J. Fox. So I know people and so I'll go look for answers too. I'll go look for answers. Davis Phinney, hey, good comment. That's a great comment. Exactly. Great resource. The Davis Phinney Foundation, they have a resource called Every Victory Counts. If you're in the United States, Every Victory Counts, I recommend it. It's like, like a Bible. It's one that you get and you put it on your shelf and you can always go look, you know, for symptoms and you can kind of, what you're dealing with that day and go find it. And, and we, Parties of Canada does that for Canada. We have the Canadian version of Davis Phinney. So great resources, things that we should always, always have. So I'm thankful for that. And what's that, what's this one? I'm very comfortable on this site. Thank you. Well, thank you. That's all it, that's all I wanted. Just a real place that we could just hang out, you know, where I could, you know, again, share what I want. And that's why, you know, and you guys are crazy. Thank you. There's no such community in Jamaica. And I'm so happy to find this channel. Well, I'm happy to have found you guys. Because I, you know, you're letting me, by what you're doing and watching and, and sharing and liking and stuff. Because when you share and like the videos and make comments and stuff, YouTube shows it to more people. We find more people with Parkinson's that are like, hey, I just found you. I just found, if you look at the comments, I just found you, I just found you. So, so, you know, you're thanking me and I'm thanking you. Because I love, I love doing this. So I appreciate you. And I appreciate you. And so thank you for that. So this is really cool. And cool, we can hang out. And I hope we can do this a lot more often. I hope we can even do it in different forums. I know that, I know, even though YouTube has changed some of the ways around where I think we can respond differently and even, you know, bring you guys in for a chat, if you want to come chat, stuff like that. So, you know what, I think it's growing. I think we can do some really cool things. And I think I'll, I'll try, I'll experiment and try new things that other ways that we can connect. I think that would be great. And it's wonderful. And what do we got now? This is something in Chinese here. So it's like, is that okay. Tube John Pepper insisting cure Parkinson's by fast walking. So John Pepper insisted he cured Parkinson's by fast walking, do you believe? Who's to say? I don't know. I'll tell you what. I, if, if it, if that's what it is, if I, if, if it's fast walking, then let's go bring it on. Let's go. Like I'll, I'll run right now, if you want me to run. So I have a little bit of hard time with that, but I, who's for me to say he did or didn't, you know I'm kind of a old school when it comes to that. I'm just kind of old school. I just feel like I'm kind of reality, call a reality where there's reality. And you know, I'll never put anybody down or call some, if I don't know, if I know, I know if I don't, I don't. And I don't, but I just know that if it just took me to walk faster and that would do it for me, then Holy smokes, man, I would line all you up right now. And we would go for a fast walk. That's just my thoughts on that. Thank you for posting that though. I do appreciate that. Um, where are we going now? Yeah, I'm uh, I'm 58 years old, but I know diagnosed six years. Well, welcome art. Welcome, welcome, welcome. I am 54 diagnosed at 40, so 15 years, but that's great. Thank you. I appreciate your art. You are a good person. I hope I can do this again. Well, thank you, Dolores. You are great people too. I think you're all amazing and and I really enjoyed hanging out with you and I'm getting really tired, so I think we're going to call it a day, but thank you so much for joining me. This was amazing. I, wait a minute. Okay. Well, your attitude, let me see. Now your attitude has really inspired me to start my own channel and podcast. I'll put my first video if I had a boy. All right. I love it. Make sure you let me know. Um, I think I'm your first subscriber on YouTube, so, uh, I'm, I'm with you. I mean, we, the more we can do and get the more word out there we can get out there. I think that would be amazing. What have we got now? I recently found your channel and posted comments a couple of times. I will follow and comment more. Thank you, Deborah. Appreciate you. Thank you so much. You guys are awesome. You're making me feel, you know what? I think I might have a good night's sleep tonight. That's my goal, but I appreciate it. I, I just, you know, just know that I'm just a real, I'm just a real person. I'm just, I'm, I'm another you, you know, we all have a story. We all have a story. We do. And so I'm not, nothing special, nothing new. I just, I'm just telling my story and I'm, I want to maybe help tell yours too. So I pray, Oh God, you guys are cooking. I'm going to keep going here because I just love this. Thank you. Well, thank you, MK. I appreciate that. Um, I think we're all different symptoms and different things help. So absolutely live, living in old Florida. I totally agree with you. You know what? And so that's what I mean. Take what, take what works, take what doesn't, you know, or don't take what doesn't, but take what works or try, try it out. Maybe it doesn't, maybe it does, maybe it doesn't. What have we got now? Okay. Needles. Good night, Bryce. Till next time. Good night. Okay. Good night. Good night. Good night. You are my first subscriber and I appreciate it. Uh-huh. I have, of course I was, I told you, you said you're going to do it. I wouldn't subscribe. That's me. Oh yeah. I'm privately subscribed. Yeah. I'm a minor private. They don't let me cause I have too many followers or whatever, but I have subscribed to your channel. I was your first, you had zero and then you had one that was me, but I'll support anybody and everybody. So there you go. Okay. Good night all. Everybody good night sleep. I hope you all sleep. Let's say, I'll tell you what, if you're up in the middle of the night, put a comment here, say I didn't make it and we'll, we'll know it. But anyway, thanks everybody. I appreciate you guys. I love you guys and we'll see you next time. Bye now.

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